Wales Cancer Patient Experience Survey

Susan Morris, Head of Services Wales

Susan Morris, Head of Services Wales

By Susan Morris, Head of Services (Wales)

When you’re unwell, the little things the people treating you do can mean a lot.

From the way you’re told about your illness to being told what to expect, these things all influence the way we feel about how we’ve been cared for.

Done well, they can make us feel valued, listened to and supported. When they aren’t done so well, they can make us feel anxious, ignored and shake our trust.

Last year, for the second time, Macmillan Wales ran the Wales Cancer Patient Experience Survey with the Welsh Government to help us to understand how people treated for cancer feel about their care.

The survey was posted to 11,000 people treated for cancer in Wales in 2015 to ask them for their views on all aspects of their cancer care.

I am delighted that 6,714 people (65%) gave their time to tell us about their care and that we are launching the results today.

What did people tell us?

Overall, people felt positive about their cancer care with 93 per cent rating their care as at least 7 out of 10 (on a scale of 0-10 where 10 = very good), which is excellent news.

97 per cent of people said they had all their treatment options explained to them, which is important in cancer care where there may be various treatments to choose from.

They told us that having a clinical nurse specialist had an overwhelmingly positive impact on their experience and were more positive on 73 out of 74 of the survey’s questions.

But people also told us that there are areas for improvement.

The Wales cancer plan says everyone should have their needs assessed and be offered a written care plan to help them address wider concerns such as finances, emotional support and support groups.

But less than a fifth (18%) of people surveyed said they had a written care plan.

The cancer plan also says every person diagnosed with cancer should be told how to access financial advice and support – yet fewer than half of people (48%) were offered this support.

The survey shows some brilliant examples of cancer care being delivered compassionately in a way that meets people with cancer’s needs.

But it also shows there is work to be done in key areas including the information people are given, their care plans and being taken seriously by their GP when they suspect they could have cancer.

What will Macmillan Wales do with the results?

We will look at the results to highlight areas that are working well which others could learn from and to campaign for improvements where needed.

We will work with the health boards to support them to develop new services and approaches to improve their cancer care.

We will provide learning and training opportunities for Macmillan professionals and staff working with people with cancer.

We will also be asking the public for your views on the results and cancer care throughout the summer at events such as the Royal Welsh Show and the National Eisteddfod.

I would like to thank every person who completed the survey – your experiences will help us to understand what is working well in cancer care in Wales and where things need to improve.

  • What is your experience of cancer care in Wales? Let us know and join the conversation on Twitter using the hashtag #wcpes17.

Arolwg Profiad Cleifion Canser Cymru

Susan Morris

Susan Morris

Gan Susan Morris, Pennaeth Gwasanaethau (Cymru)

Pan fyddwch chi’n sâl, mae’r pethau bach mae pobl sy’n eich trin yn eu gwneud yn gallu golygu llawer iawn.

O sut rydych chi’n clywed bod gennych chi salwch i gael gwybod beth i’w ddisgwyl, mae’r pethau hyn i gyd yn dylanwadu ar sut rydym ni’n teimlo am ein gofal.

O’u gwneud yn dda, maen nhw’n gallu gwneud i ni deimlo ein bod ni’n cael ein gwerthfawrogi, ein clywed a’n cefnogi. Pan nad ydyn nhw’n cael eu gwneud cystal, maen nhw’n gallu gwneud i ni deimlo’n ofidus, ein bod ni’n cael ein hanwybyddu ac yn ysgwyd ein hymddiriedaeth.

Y llynedd, am yr ail dro, cynhaliodd Macmillan Cymru Arolwg Profiad Cleifion Canser Cymru gyda Llywodraeth Cymru i’n helpu ni i ddeall sut mae pobl sy’n cael eu trin am ganser yn teimlo am eu gofal.

Cafodd yr arolwg ei bostio at 11,000 o bobl a gafodd eu trin am ganser yng Nghymru yn 2015 i ofyn am eu barn ar bob agwedd ar eu gofal canser.

Rwyf wrth fy modd i 6,714 o bobl (65%) roi eu hamser i ddweud wrthyn ni am eu gofal a’n bod ni’n lansio’r canlyniadau heddiw.

Beth ddywedodd pobl wrthym ni?

At ei gilydd, teimlai pobl yn bositif am eu gofal canser gyda 93 y cant yn graddio eu gofal o leiaf 7 allan o 10 (ar raddfa o 0-10 lle roedd 10 = da iawn), sy’n newyddion ardderchog.

Dwedodd 97 y cant o bobl fod eu holl opsiynau triniaeth wedi eu hesbonio iddyn nhw, sy’n bwysig mewn gofal canser lle mae’n bosibl y bydd amrywiol driniaethau i ddewis o’u plith.

Dwedon nhw wrthym ni fod cael nyrs glinigol arbenigol wedi cael effaith hynod o gadarnhaol ar eu profiad ac roedden nhw’n fwy positif ar 73 allan o 74 o gwestiynau’r arolwg.

Ond dywedodd pobl wrthym ni fod yna feysydd i’w gwella hefyd.

Mae cynllun canser Cymru yn dweud y dylai anghenion pawb gael eu hasesu a dylen nhw gael cynnig cynllun gofal ysgrifenedig i’w helpu i ymdrin â phryderon ehangach fel cyllid, cefnogaeth emosiynol a grwpiau cymorth.

Ond dwedodd llai nag un o bob pump (18%) o bobl yn yr arolwg eu bod wedi cael cynllun gofal ysgrifenedig.

Mae’r cynllun canser yn dweud hefyd y dylai pawb sydd wedi cael diagnosis o ganser gael gwybodaeth am sut i gyrchu cyngor a chefnogaeth ariannol – ond llai na hanner y bobl (48%) a gafodd gynnig y gefnogaeth hon.

Mae’r arolwg yn dangos rhai enghreifftiau gwych o ofal canser sy’n cael ei ddarparu’n dosturiol mewn modd sy’n bodloni anghenion pobl â chanser.

Ond mae’n dangos hefyd bod gwaith i’w wneud mewn meysydd allweddol gan gynnwys yr wybodaeth sy’n cael ei rhoi i bobl, eu cynlluniau gofal a chael eu cymryd o ddifrif gan eu meddyg teulu pan fyddan nhw’n amau y gallai fod canser ganddyn nhw.

Beth fydd Macmillan Cymru yn gwneud gyda’r canlyniadau?

Byddwn ni’n edrych ar y canlyniadau i amlygu meysydd sy’n gweithio’n dda y gallai pobl eraill ddysgu ohonyn nhw ac i ymgyrchu am welliannau lle mae eu hangen.

Byddwn ni’n gweithio gyda’r byrddau iechyd i’w cefnogi i ddatblygu gwasanaethau newydd a dulliau o wella eu gofal canser.

Byddwn ni’n darparu cyfleoedd dysgu a hyfforddi i weithwyr proffesiynol Macmillan a staff sy’n gweithio gyda phobl â chanser.

Byddwn hefyd yn gofyn i’r cyhoedd am eich barn ar y canlyniadau ac am ofal canser drwy gydol yr haf mewn digwyddiadau fel Sioe Frenhinol Cymru a’r Eisteddfod Genedlaethol.

Hoffwn i ddiolch i bawb a gwblhaodd yr arolwg – bydd eich profiadau chi’n ein helpu i ddeall beth sy’n gweithio’n dda mewn gofal canser yng Nghymru a ble mae angen i bethau wella.

  • Beth yw’ch profiad chi o ofal canser yng Nghymru? Gadewch i ni wybod ac ymunwch â’r sgwrs ar Twitter gan ddefnyddio’r hashtag #wcpes17.

Can health and social care in Wales ever be genuinely integrated?

This is a cross-post from Think. Improve. Change. A blog from Macmillan Cancer Support’s team of researchers, policy analysts and public affairs experts.

Greg Pycroft, Macmllan in Wales Policy Officer

Greg Pycroft, Macmllan in Wales Policy Officer

Greg Pycroft on the Parliamentary Review and what we want to see for cancer services in Wales.

Health and social care services are under the microscope in Wales following the Welsh Health Secretary’s  announcement in November last year that he will be commissioning a wide ranging review.

Commanding cross-party support, the Parliamentary Review has been asked to  advise on how to delivery change and build on the best of the current system.  

The Review Panel is expected to set out a vision for the future and come up with the seemingly impossible – a solution for health and social care to work in a more genuinely integrated way.

Its findings are expected to influence the tone, shape and content of Welsh health and social care policy and legislation for the rest of this – the fifth – Assembly term, and long into the future.

Cabinet Secretary for Health, Well-being and Sport

Cabinet Secretary for Health, Well-being and Sport

The Review has just over a year to investigate and report back to Assembly Members. An interim report is expected this summer and we should see the final report towards the end of 2017/early 2018.

Early indications are that the Review Panel are rightly focussing on areas of challenge and our fingers are crossed that their recommendations will be workable to take forward improvements to the way health and social care services are delivered in Wales.

The Review Panel reviewing health and social care in Wales

The Review Panel

This is a great opportunity for us at Macmillan to highlight our main campaign areas and call on the Review to ensure person centred care is put front and centre of recommendations for the future. While these themes reflect our insights on cancer services, they’re largely universal to other conditions.

In responding to the call for evidence stakeholders were invited to respond to eleven questions. We maintained our focus on delivering person centred care to improve the lives of people living with cancer.  

Alongside the critical issues of coordinating care and the impact cancer has on finances, we focussed on the changing cancer story and the crucial role the professional cancer workforce has in improving the quality of life for people with cancer.    

We were also invited to speak to members of the Review Panel and were asked for our views on how best to provide patient information and how technology could enhance this experience for patients to enable them to feel more in control of their own care.  

They also expressed an interest in learning from best practice and how this could be spread to deliver a Once for Wales approach.  Our focus on service re-design was welcomed and we were asked to expand upon some of Macmillan’s innovative programme of work delivered across the UK.

The chamber in the Senedd

The chamber in the Senedd

As the formal evidence gathering ends the Review moves onto its deliberative phase and we expect an interim report in July. The final report is anticipated to arrive in December, and we hope to see the case being made for significant reforms over the next decade to the health and social care system in Wales.  

We want to see recommendations that can be implemented relatively swiftly; leadership and real change to ensure Wales delivers person-centred care for people with cancer that is fit for the 21st century.

However, we temper our enthusiasm with a note of caution; we have experience in Wales of similar, large scale reviews – for instance, the Williams Commission’s review of public services – ending up left on the shelf after exposure to party political posturing.

Health and social care in Wales depends on the cross-party support for change holding and the case for change being persuasive enough to allow meaningful reform to start from the point the Review publishes its final recommendations.    Watch this space!

The Review Panel

Dyfodol iechyd a gofal cymdeithasol yng Nghymru?

Mae hwn yn draws bost gan Meddwl.  Gwella.  Newid.  Blog gan dîm Cymorth Canser Macmillan o ymchwilwyr, dadansoddwyr polisi ac arbenigwyr materion cyhoeddus.

Swyddog Polisi (Cymru)

Swyddog Polisi (Cymru)

Greg Pycroft ar yr Adolygiad Seneddol a’r hyn yr ydym eisiau ei weld ar gyfer gwasanaethau canser yng Nghymru.

Mae gwasanaethau iechyd a gofal cymdeithasol o dan y chwyddwydr yng Nghymru yn dilyn cyhoeddiad Ysgrifennydd Iechyd Cymru ym mis Tachwedd y llynedd y bydd yn comisiynu adolygiad pellgyrhaeddol .

Yn galw am gefnogaeth ar draws y pleidiau, gofynnwyd i’r Adolygiad Seneddol gynghori ynghylch sut i gyflawni newid a datblygu’r elfennau gorau o’r system bresennol. Disgwylir i’r Panel Adolygu osod gweledigaeth ar gyfer y dyfodol a chreu ateb – sy’n ymddangos yn amhosibl – ar gyfer gwaith iechyd a gofal cymdeithasol mewn ffordd mwy integredig.

Vaughan Gething, Ysgrifennydd y Cabinet dros Iechyd, Llesiant a Chwaraeon

Vaughan Gething, Ysgrifennydd y Cabinet dros Iechyd, Llesiant a Chwaraeon

Disgwylir i’w ganfyddiadau ddylanwadu ar gywair, ffurf a chynnwys polisi a deddfwriaeth iechyd a gofal cymdeithasol Cymru am weddill y pumed tymor hwn o’r Cynulliad, ac ymhell i’r dyfodol.

The Review Panel reviewing health and social care in Wales

Mae gan yr Adolygiad ychydig dros flwyddyn i ymchwilio ac adrodd yn ôl i Aelodau’r Cynulliad. Disgwylir adroddiad interim yr haf hwn a dylem weld yr adroddiad terfynol tuag at ddiwedd 2017/dechrau 2018. Yr arwyddion cynnar yw bod y panel Adolygu, yn iawn felly, yn canolbwyntio ar feysydd heriol ac rydym yn croesi ein bysedd y gellir gweithio gyda’r argymhellion er mwyn dwyn y gwelliannau yn eu blaen o ran y ffordd y caiff gwasanaethau iechyd a gofal cymdeithasol eu cyflwyno yng Nghymru.

Mae hwn yn gyfle gwych i ni yn Macmillan i amlygu prif feysydd ein hymgyrch a galw ar yr Adolygiad i sicrhau bod gofal sy’n canolbwyntio ar y person yn cael ei wneud yn flaenllaw ac yn ganolog i’r argymhellion ar gyfer y dyfodol. Er bod y themâu hyn yn adlewyrchu ein mewnwelediad ar wasanaethau canser, maent yn gyffredinol i gyflyrau eraill.

Wrth ymateb i’r alwad am dystiolaeth gwahoddwyd rhanddeiliaid i ymateb i un ar ddeg o gwestiynau. Fe wnaethom barhau i ganolbwyntio ar gyflwyno gofal sy’n canolbwyntio ar y person er mwyn gwella bywydau pobl sy’n byw gyda chanser.  

Ynghyd â materion hanfodol cydlynu gofal a’r effaith y mae canser yn ei gael ar gyllid, fe wnaethom ganolbwyntio ar stori newidiol canser a rôl hanfodol gweithlu proffesiynol canser yn gwella ansawdd bywyd ar gyfer pobl â chanser.    

Cawsom wahoddiad hefyd i siarad ag aelodau’r panel Adolygu a gofynnwyd i ni am ein barn ynghylch y ffordd orau o ddarparu gwybodaeth am ganser a sut y gallai technoleg wella’r profiad hwn i gleifion i’w galluogi i deimlo mwy o reolaeth dros eu gofal eu hunain.  

The chamber in the Senedd

Fe wnaethant hefyd fynegi diddordeb yn dysgu o arfer gorau a sut y gallai hyn ledaenu i ymagwedd Unwaith i Gymru. Cafodd ein ffocws ar ailddylunio gwasanaethau ei groesawu a gofynnwyd i ni ehangu rhywfaint ar waith rhaglen arloesol Macmillan sy’n cael ei gyflwyno ar draws y DU.

Wrth i’r gwaith ffurfiol o gasglu tystiolaeth ddod i ben, mae’r Adolygiad yn symud i gyfnod ymgynghori ac rydym yn disgwyl adroddiad interim ym mis Gorffennaf. Rhagwelir y bydd yr adroddiad terfynol yn cyrraedd ym mis Rhagfyr, ac rydym yn gobeithio bydd yr achos yn cael ei gyflwyno dros ddiwygio sylweddol dros y degawd nesaf o ran y system iechyd a gofal cymdeithasol yng Nghymru.  Rydym eisiau gweld argymhellion y gellir eu gweithredu’n gyflym; arweinyddiaeth a newid gwirioneddol er mwyn sicrhau bod Cymru’n cyflwyno gofal sy’n canolbwyntio ar y person ar gyfer pobl â chanser sydd yn addas ar gyfer yr 21ain ganrif.

Fodd bynnag, mae elfen o rybudd yn ein brwdfrydedd; mae gennym brofiad yng Nghymru o adolygiadau graddfa fawr tebyg – er enghraifft, adolygiad Comisiwn Williams o wasanaethau cyhoeddus – gafodd ei adael ar y silff ar ôl bod yn destun dadlau rhwng y pleidiau gwleidyddol. Mae iechyd a gofal cymdeithasol yng Nghymru yn dibynnu ar gefnogaeth ar draws y pleidiau o ran cynnal newid a bod yr achos dros newid yn ddigon cadarn i ganiatáu i ddiwygio ystyrlon ddechrau pan fydd yr Adolygiad yn cyhoeddi ei argymhellion terfynol.   Mwy i ddilyn.

 

 

 

Q & A with Paula Hall, Macmillan Family Information and Support Officer

Today sees the start of Carers Week so we asked Paula Hall, a Macmillan Family Information and Support Officer, to tell us a bit about her role. Based at Bridgend Carers Centre, Paula offers holistic support to people and families affected by cancer and other life-limiting illnesses.

PAULA HALL 1024

Tell us a bit about your role?

I’m the Family Information and Support Officer for Macmillan. I provide carers in Bridgend County Borough with emotional and practical support.

I meet people at their homes, or at the carers centre, in a hospital setting or even over the telephone. For example, I go out to the Macmillan Unit at Y Bwthyn Newydd once a week to raise awareness and to meet with families of people affected by cancer to offer information and support.

Many carers aren’t used to someone asking, “How are you?” People rarely ask about them – it is usually about the person they care caring for.

I’m there to help signpost people to expert legal support, financial and benefits advice.

When I go and see a carer, I always start the conversation by saying “Well I’m not medical. I’m not trained in the hospital setting and they say “Oh that’s nice. I don’t want to see another nurse, another doctor or another consultant!”

It’s not just emotional support and signposting that you offer is it? Tell us a bit about the organised activities and therapies that people can access at the centre?

We have a wide programme of activities and support to appeal to all abilities and interests.

There’s a number of social activities that we offer including day trips, cream teas, a weekly book cwtch, crafting and even adult colouring!

We recently had a weekend yoga retreat at the Margam Discovery Centre which was brilliantly received. Gail Needham is our amazing yoga teacher comes in and tailors her class to the ages and ability of the people here. It wasn’t just yoga there was also mindfulness, walking and breathing techniques to help people reduce stress.

We have a newsletter which goes out to 3,000 carers in the Bridgend borough. Inside there is a dairy with four months worth of activities. So in August, if you are on our database you’ll receive the September to December newsletter. It basically tells carers what is going on Monday to Friday at the centre.

You can read the latest newsletter here

We also have a fortnightly foot clinic, and a holistic therapists comes to the centre to offer treatment such as reiki and reflexology.

Can people affected by cancer access some of these in their own homes?

Yes, a therapist can also go out with me and visit families at their homes if somebody is in bed and very poorly. We get funding to provide these services so she will go out and do Reiki, reflexology.

There’s a guy she is seeing through us who has really poorly feet as a result of his chemotherapy treatment. She gives him therapy at home. She’s fantastic!

Do people gradually slip into becoming carers?

Well sometimes becoming a carer is a very, very slow and very gradual journey, and sometimes it’s ‘bang’ and it’s crisis! I see carers from both ends of the spectrum.

Sometimes the carer can be the person with the cancer diagnosis do you they face particular problems?

Yes, the carer can be the person with a cancer diagnosis – that’s not an uncommon situation. Just today I am arranging to meet a lady who is caring for her husband who has the early onset signs of dementia. She’s been caring for him for a number of years but she since has since been diagnosed with bowel cancer.  Carers can also suffer from a number of illnesses – for example depression.

Do people sometimes reject the carer label?

You’ve got to be very careful of course when you ask people if they are caring for someone.  Some people say “No, it’s my wife, it’s my job, it’s my duty so of course I not her carer.”

You have to be very sensitive around the carer label.

How can carers in Bridgend Borough get in touch with you?

The best way to get in touch is to call Bridgend Carers Centre on 01656 658 479 during office hours.

My role is part-time, and the nature of my job is that I am out and about a lot but someone will take a message and I’ll get back in touch as soon as I can.

Or drop in and say hello. We’re at 87 Park Street. Bridgend, CF31 4AZ.

Thanks Paula for giving us your time

Sesiwn Holi ac Ateb gyda Paula Hall sydd yn Swyddog Gwybodaeth a Chymorth i Deuluoedd gyda Macmillan

Heddiw yw dechrau Wythnos y Gofalwyr felly fe wnaethom ofyn i Paula Hall, sydd yn Swyddog Gwybodaeth a Chymorth i Deuluoedd gyda Macmillan, i ddweud ychydig wrthym am ei swydd.  Mae Paula, sydd wedi ei lleoli ym Mhen-y-bont ar Ogwr, yn cynnig cymorth holistaidd i bobl a theuluoedd sydd wedi eu heffeithio gan ganser a salwch arall sy’n cyfyngu ar eu bywyd.

PAULA HALL 1024

Dywedwch ychydig wrthym am eich swydd?

Fi yw Swyddog Gwybodaeth a Chymorth i Deuluoedd Macmillan. Rwy’n rhoi cymorth emosiynol ac ymarferol i ofalwyr ym Mwrdeistref Sirol Pen-y-bont ar Ogwr.

Rwyf yn cyfarfod pobl yn eu cartrefi, neu yn y ganolfan gofalwyr, mewn ysbytai, neu hyd yn oed dros y ffôn. Er enghraifft, rwyf yn mynd allan i Uned Macmillan yn Y Bwthyn Newydd unwaith yr wythnos i godi ymwybyddiaeth, ac i gyfarfod â theuluoedd pobl sydd wedi eu heffeithio gan ganser i roi gwybodaeth a chymorth.

Mae llawer o ofalwyr heb arfer â rhywun yn gofyn, “Sut ydych chi?” Anaml y mae pobl yn gofyn amdanynt – mae fel arfer yn ymwneud â’r person y maent yn gofalu amdanynt.

Rwyf yno i helpu i gyfeirio pobl at gymorth arbenigol yn ymwneud â’r gyfraith, arian a budd-daliadau.

Pan fyddaf yn mynd i weld gofalwr, rwyf bob amser yn dechrau’r sgwrs trwy ddweud “Wel, nid wyf yn feddygol. Nid wyf wedi cael hyfforddiant mewn ysbyty ac maent yn dweud “Mae hynny’n braf.  Dydw i ddim eisiau gweld nyrs arall na meddyg ac ymgynghorydd arall!”

Rydych yn cynnig mwy na chymorth emosiynol a chyfeirio yn unig yn d’ydych? Dywedwch ychydig wrthym am y gweithgareddau sy’n cael eu trefnu a’r therapïau y gall pobl eu cael yn y ganolfan?

Mae gennym raglen eang o weithgareddau a chymorth i apelio at bob gallu a diddordeb.

Rydym yn cynnig nifer o weithgareddau cymdeithasol yn cynnwys teithiau dydd, te hufen, cwtsh llyfrau wythnosol, crefftau a lliwio i oedolion hyd yn oed!

Yn ddiweddar, cawsom benwythnos encil ioga yng Nghanolfan Ddarganfod Margam, gafodd dderbyniad gwych. Mae Gail Needham, ein hathrawes ioga ragorol, yn dod i mewn ac yn teilwra ei dosbarth i oed a gallu’r bobl sydd yma.  Nid ioga yn unig ydoedd, roedd ymwybyddiaeth ofalgar, cerdded a thechnegau anadlu hefyd i helpu pobl i leihau straen.

Mae cylchlythyr yn cael ei anfon at 3,000 o ofalwyr ym mwrdeistref Pen-y-bont ar Ogwr.  Ynddo ceir dyddiadur gyda gwerth pedwar mis o weithgareddau. Felly ym mis Awst, os ydych ar ein cronfa ddata, byddwch yn cael cylchlythyr Medi i Ragfyr.  Yn fras, mae’n dweud wrth ofalwyr beth sydd yn digwydd o ddydd Llun i ddydd Gwener yn y ganolfan.

Gallwch ddarllen y cylchlythyr yma

Mae gennym hefyd glinig traed bob penwythnos, ac mae therapïau holistaidd yn dod i’r ganolfan i gynnig triniaeth fel reiki ac adweitheg.

A yw pobl sydd wedi eu heffeithio gan ganser yn gallu cael rhai o’r rhain yn eu cartrefi eu hunain?

Ydyn, gall therapydd ddod gyda mi i ymweld â theuluoedd yn eu cartrefi os oes rhywun yn y gwely ac yn sâl iawn. Rydym yn cael cyllid i ddarparu’r gwasanaethau hyn felly bydd yn mynd allan ac yn gwneud Reiki ac adweitheg.

Mae yna ddyn y mae’n ei weld trwom ni sydd â thraed gwael iawn o ganlyniad i’w driniaeth cemotherapi. Mae’n rhoi therapi iddo yn ei gartref.  Mae’n wych!

A yw pobl yn llithro’n raddol i fod yn ofalwyr?

Weithiau mae dod yn ofalwr yn daith araf a graddol iawn iawn ac weithiau mae’n argyfwng ar unwaith! Rwy’n gweld gofalwyr o ddau begwn y sbectrwm.

Weithiau, y gofalwr sydd wedi cael diagnosis o ganser.  Ydych chi’n credu eu bod yn wynebu problemau penodol?

Ydw, gall y gofalwr fod wedi cael diagnosis o ganser – nid yw hynny’n sefyllfa anghyffredin. Heddiw, rwyf yn trefnu cyfarfod â menyw sy’n gofalu am ei gŵr sydd ag arwyddion cynnar o ddementia. Mae wedi bod yn gofalu amdano ers sawl blwyddyn ond mae wedi cael diagnosis o ganser y coluddyn ers hynny.  Mae gofalwyr yn gallu dioddef sawl math gwahanol o salwch hefyd – iselder er enghraifft.

A yw pobl weithiau’n gwrthod y label gofalwr?

Mae’n rhaid i chi fod yn ofalus iawn wrth gwrs pan fyddwch yn gofyn i bobl a ydynt yn gofalu am rywun.  Mae rhai pobl yn dweud “Na, hi yw fy ngwraig i, dyna fy ngwaith, fy nyletswydd felly wrth gwrs nad fi yw ei gofalwr.”

Mae’n rhaid i chi fod yn sensitif iawn am y label gofalwr.

Sut gall gofalwyr ym Mwrdeistref Pen-y-bont ar Ogwr gysylltu â chi?

Y ffordd orau o gysylltu yw ffonio Canolfan Gofalwyr Pen-y-bont ar Ogwr ar 01656 658 479 yn ystod oriau swyddfa.

Mae fy swydd yn un rhan-amser, a natur fy swydd yw fy mod allan cryn dipyn ond bydd rhywun yn cymryd neges a byddaf yn cysylltu â chi cyn gynted ag y gallaf.

Neu galwch heibio i ddweud helo. Ein cyfeiriad yw 87 Stryd y Parc. Pen-y-bont ar Ogwr, CF31 4AZ.

Diolch Paula am roi eich amser i ni!

 

 

Meet the Winners of the Macmillan Volunteering Awards in Wales

Lowri Parsons from Pontyclun, the Macmillan Merthyr Fundraising Committee and Audrey Gratton from Briton Ferry received awards at the Macmillan Volunteer Thank You Event at the National Botanic Gardens of Wales on Sunday 4 June.

The awards are given in recognition of supporters who demonstrate going above and beyond to contribute to Macmillan through activities such as fundraising and raising awareness.

We spoke to all three winners to find out more about their fantastic fundraising efforts and how they felt about winning the award.

Lowri, who lives in Pencoed, became a Macmillan supporter after her Grandad had been diagnosed with lung cancer and her Nana became a member of the Pontyclun and District Fundraising Group.

Lowri has taken part in lots of different events including dressing as the Macmillan mascot, Muggy, at a local fete, recruiting walkers to the Llantrisant Walk and organising her own coffee morning which raised £450.Lowri with her award in garden smaller res

On hearing that she had won the award, Lowri said: “I was very happy when I found out I’d won the award!

“Even if I hadn’t won, I’d still have been happy to have been chosen to take part.

“I started fundraising when my Nan started, and then my Mum and Stepdad joined in and I just wanted to help out.

“I really liked being Muggy, that was really fun and has been my favourite activity so far.”

The Merthyr Fundraising Committee won the Committee Award in recognition of teamwork, inspiring others, achieving outstanding fundraising success.

The committee hosts an entire calendar of diverse events and collections, including luncheons, quiz nights, coffee morning and agricultural shows.

In 2016, the group organised a fashion show with John Lewis which was supported by Jeff Banks and Only Men Aloud and attracted over 700 people.

To date, the committee have raised a staggering £765,356. Many members have had their own experiences of cancer and come together as a team to maximise fundraising and enable more people in the community to get involved and learn more about Macmillan.

The Merthyr Committee with award smaller res

On hearing the committee had won the award, Alison Lewis, Chair of the Committee, said: “We are so proud that this award has been given to the Merthyr Tydfil committee and would like to attribute it to the people of the area.

“It’s a very caring and generous community and people who haven’t got an awful lot always contribute.

“We try our best to involve different people in the community and if there’s any opportunity, we take it.”

Audrey Gratton was a founding member of the Briton Ferry and Neath Macmillan Fundraising Committee when it was formed 45 years ago and received the Sir Hugh Dundas Volunteer of the Year Award.

At 93 years, Audrey is as active and enthusiastic as ever and is always ready to volunteer at events and collections, including the monthly coffee mornings.

On hearing that she had won the award, Audrey said: “I was astounded when I found out I had won, I didn’t expect it.

“I lost my daughter at a young age to ovarian cancer and my father and grandmother also had cancer.

“We started the committee as close friends and found people in the community were very supportive, and it grew from there.”

whole room clapping smaller res

Well done to our winners and a big thank you to all our volunteers for your dedicated support and fantastic fundraising efforts.

Dyma Enillwyr Gwobrau Gwirfoddoli Macmillan yng Nghymru

Derbyniodd Lowri Parsons o Bontyclun, Pwyllgor Codi Arian Macmillan Merthyr ac Audrey Gratton o Lansawel wobrau yn Nigwyddiad Diolch i Wirfoddolwyr Macmillan yng Ngardd Fotaneg Genedlaethol Cymru ar ddydd Sul 4 Mehefin.

Mae’r gwobrau’n cydnabod cefnogwyr sydd yn mynd y tu hwnt i ddisgwyliadau i gyfrannu at Macmillan trwy weithgareddau fel codi arian a chynyddu ymwybyddiaeth.

Cawsom air gyda’r tri enillydd i ganfod mwy am eu hymdrechion codi arian gwych a sut roeddent yn teimlo am ennill y wobr.

Dechreuodd Lowri, sydd yn byw ym Mhencoed, gefnogi Macmillan ar ôl i’w Thad-cu gael diagnosis o ganser yr ysgyfaint a daeth ei Mam-gu yn aelod o Grŵp Codi Arian Pontyclun a’r Cyffiniau.

Mae Lowri wedi cymryd rhan mewn llawer o ddigwyddiadau gwahanol yn cynnwys gwisgo fel masgot Macmillan, Muggy, mewn ffair leol, recriwtio cerddwyr ar Daith Gerdded Llantrisant a threfnu ei bore coffi ei hun, a gododd £450.Lowri with her award in garden smaller res

Wrth glywed ei bod wedi ennill y wobr, dywedodd Lowri “Roeddwn yn hapus iawn o ganfod fy mod wedi ennill y wobr!

“Hyd yn oed pe na fyddwn wedi ennill, byddwn wedi bod yn hapus i fod wedi cael fy newis i gymryd rhan.

“Dechreuais godi arian pan wnaeth fy Mam-gu ddechrau, ac yna fe ymunodd fy Mam a’m Llys-dad ac roeddwn eisiau helpu.

“Roeddwn wrth fy modd fel Muggy, roedd hynny’n hwyl a dyna yw fy hoff weithgaredd hyd yn hyn.”

Enillodd Pwyllgor Codi Arian Merthyr y Wobr Gymunedol i gydnabod gwaith tîm, ysbrydoli eraill a llwyddiant codi arian rhagorol.

Mae’r pwyllgor yn cynnal calendr cyfan o ddigwyddiadau a chasgliadau amrywiol, yn cynnwys cinio, nosweithiau cwis, boreau coffi a sioeau amaethyddol.

Yn 2016, trefnodd y grŵp sioe ffasiynau gyda John Lewis a gefnogwyd gan Jeff Banks ac Only Men Aloud gan ddenu dros 700 o bobl.

Hyd yn hyn, mae’r pwyllgor wedi codi £765,356. Mae llawer o’r aelodau wedi cael profiadau personol o ganser ac wedi dod ynghyd fel tîm i godi cymaint o arian â phosibl a galluogi mwy o bobl yn y gymuned i gymryd rhan a dysgu mwy am Macmillan.

The Merthyr Committee with award smaller res

Wrth glywed bod y pwyllgor wedi ennill y wobr, dywedodd Alison Lewis, Cadeirydd y Pwyllgor: “Rydym yn falch iawn bod y wobr hon wedi cael ei rhoi i bwyllgor Merthyr Tudful a hoffem ei phriodoli i bobl yr ardal.

“Mae’n gymuned ofalgar a hael iawn ac mae pobl sydd heb lawer bob amser yn cyfrannu.

“Rydym yn ceisio cynnwys pobl wahanol yn y gymuned ac rydym yn achub ar unrhyw gyfle.”

Roedd Audrey Gratton yn un o sylfaenwyr Pwyllgor Codi Arian Macmillan Llansawel a Chastell-nedd pan gafodd ei ffurfio 45 mlynedd yn ôl a derbyniodd Gwobr Gwirfoddolwr y Flwyddyn Syr Hugh Dundas.

Yn 93 oed, mae Audrey mor egnïol a brwdfrydig ag erioed ac mae bob amser yn barod i wirfoddoli mewn digwyddiadau a chasgliadau, yn cynnwys y boreau coffi misol.

Wrth glywed ei bod wedi ennill y wobr, dywedodd Audrey: “Cefais fy synnu pan gefais wybod fy mod wedi ennill.  Roedd yn gwbl annisgwyl.

“Collais fy merch yn ifanc iawn i ganser yr ofari a chafodd fy nhad a’m mam-gu ganser hefyd.

whole room clapping smaller res

“Fe wnaethom ddechrau’r pwyllgor fel ffrindiau agos a chanfod bod pobl yn y gymuned yn gefnogol iawn, a thyfodd o hynny.”

Da iawn i’n henillwyr a diolch o galon i’n gwirfoddolwyr i gyd am eich cefnogaeth ymroddedig a’ch ymdrechion rhagorol yn codi arian.

Talking to someone like Bethan can help make money one less worry.

Bethan blog pic croppedThe money worries caused by cancer can be huge, and since 2010 Macmillan Wales has helped people affected by cancer to access over £75 million in financial support.

Bethan Davies, a Macmillan welfare benefits adviser, explains how we can help.

 

What are the main money worries caused by cancer?

For people diagnosed with cancer, and their families, the financial pressures caused by cancer can be really frightening – what if I can’t work during treatment? How am I going to afford such a massive change in my circumstances? How am I going to pay my rent or mortgage? How can I afford the costs caused by cancer like increased heating bills or travel expenses?

Being diagnosed with cancer isn’t something people plan or budget for, so our job is to offer people the financial information and expertise they need.

How can people who need support get in touch?

There are Macmillan benefits advisers like me based across Wales.

People affected by cancer can contact us directly, or they can be referred to us through a health practitioner such as their cancer nurse, consultant or GP.

My own patch is in Abertawe Bro Morgannwg University Health Board.

I provide benefits advice surgeries in the sarcoma and head-and-neck clinics at Morriston Hospital in Swansea, the Macmillan information pod in the radiotherapy department of Singleton Hospital and in Y Bwthyn Newydd at the Princess of Wales Hospital.

I also run a drop-in surgery every month in the Bridgend Carers Centre, which means I can offer welfare advice to cancer patients and their carers.

What kind of help and advice can you offer people with cancer?

Our service is free and confidential not only for people with cancer, but also their families.

We offer advice and information on benefits, tax credits, grants and loans to help people make informed choices on their finances and any benefits they may be entitled to.

Everyone who comes to us has different needs, and we can advise and assist with applications on a wide range of health-related welfare benefits.  We are whizzes at form filling.

People supported in 2016

We cover means tested income related benefits, as well as non-means tested benefits such as Personal Independence Payments and Attendance Allowance.

Quite often we help with housing costs – things like housing benefit, discretionary housing payments and advice on mortgage interest payments – so cancer patients and their families don’t have to worry about how to keep a roof over their heads.

We can apply for Macmillan grants, and other sources of funding to help with the additional costs of cancer like increased heating bills, petrol expenses and the extra clothing people find they need as their weight fluctuates during treatment.

Not everything is straight-forward, so we work closely with people for as long as they need, including appealing decisions and attending tribunals on their behalf to make sure they receive the benefits they are entitled to because of their illness.

We also advise people who may be looking after someone diagnosed with cancer, and who may have experienced reductions in their income because of their new and demanding responsibilities as a carer.

Our service is here for people of all ages and all personal situations.

Tell us about when you’ve made a difference?

It can be a tough and emotional job.  One of my clients was diagnosed with oesophageal cancer at just 40 years of age, and passed away within three months of being diagnosed.

It was not an easy situation, but I was able to set his benefit entitlement up promptly and advise a man, who had never claimed a benefit in his life, on what was available to him because of his illness.

He was gravely ill, and it was an obvious relief to him and a huge weight off his mind to know that at least some of his finances had been put in order.

Later, I also provided financial guidance and support to his wife and three young children, and helped them with their worries about how to pay the rent and ensure they did not lose their home.

There was no escaping the fact that this was a heart-breaking time for the family, but there was also a very real sense of relief that at least some of the pressure had been taken off by having their finances put in order.

Impact

What advice would you give to someone diagnosed with cancer?

Get financial advice at the earliest opportunity.  Money worries only get worse if nothing is done about them.

Lots of people tell me they had no idea about what finances were available, and because of that find themselves struggling with money worries at the same time they are trying to deal with the emotional and physical impacts of their treatment.

For many it can simply be that the form filling-in looks daunting when you may never have claimed a benefit in your life.

Whether you think you qualify or not, I would recommend that anyone affected by cancer gets in touch.

No matter what it is, whether you think it is big or small, we are on hand to help support, advise and signpost you in the right direction.

If you need financial support please visit www.macmillan.org.uk where you can search for your local welfare benefits services, or call the Macmillan Support line on 0808 808 00 00.

Gall siarad â rhywun fel Bethan helpu i wneud arian yn un peth yn llai i boeni yn ei gylch.

 

Bethan blog pic cropped

Gall y pryderon ynghylch arian a achosir gan ganser fod yn enfawr, ac er 2010, mae Macmillan Cymru wedi helpu pobl sydd wedi eu heffeithio gan ganser i gael mynediad i dros £75 miliwn mewn cymorth ariannol.

Mae Bethan Davies, cynghorydd budd-daliadau lles Macmillan, yn esbonio sut gallwn helpu.

Beth yw’r prif bryderon am arian a achosir gan ganser?

I bobl sydd wedi cael diagnosis o ganser a’u teuluoedd, gall y pwysau ariannol a achosir gan ganser fod yn frawychus – beth os na allaf weithio yn ystod y driniaeth? Sut wyf yn mynd i fforddio newid mor sylweddol yn fy amgylchiadau? Sut wyf yn mynd i dalu fy rhent neu fy morgais? Sut gallaf fforddio’r costau a achosir gan ganser fel biliau gwresogi uwch neu gostau teithio?

Nid yw cael diagnosis o ganser yn rhywbeth y mae pobl yn cynllunio neu’n cyllidebu ar ei gyfer, felly ein gwaith ni yw rhoi’r wybodaeth ariannol a’r arbenigedd y mae pobl ei angen.

Sut gall pobl sydd angen cymorth gysylltu?

Mae cynghorwyr budd-daliadau Macmillan fel fi wedi eu lleoli ar hyd a lled Cymru.

Gall pobl sydd wedi eu heffeithio gan ganser gysylltu â ni yn uniongyrchol, neu gellir eu hatgyfeirio atom trwy ymarferydd iechyd fel eu nyrs ganser, eu hymgynghorydd neu eu meddyg teulu.

Fy ardal i yw Bwrdd Iechyd Prifysgol Abertawe Bro Morgannwg.

Rwy’n darparu meddygfeydd cyngor ar fudd-daliadau yn y clinigau sarcoma a’r pen a’r gwddf yn Ysbyty Treforys yn Abertawe, pod gwybodaeth Macmillan yn adran radiotherapi Ysbyty Singleton ac yn Y Bwthyn Newydd yn Ysbyty Tywysoges Cymru.

Rwyf hefyd yn cynnal meddygfa galw heibio bob mis yng Nghanolfan Gofalwyr Pen-y-bont ar Ogwr, sy’n golygu y gallaf roi cyngor lles i gleifion canser a’u gofalwyr.

Beth fath o gymorth a chyngor y gallwch ei gynnig i bobl â chanser?

Mae ein gwasanaeth am ddim ac yn gyfrinachol nid yn unig i bobl â chanser, ond i’w teuluoedd hefyd.

Rydym yn rhoi cyngor a gwybodaeth am fudd-daliadau, credydau treth, grantiau a benthyciadau i helpu pobl i wneud dewisiadau gwybodus am eu sefyllfa ariannol ac unrhyw fudd-daliadau y mae ganddynt hawl iddynt.

Mae gan bawb sydd yn dod atom anghenion gwahanol, a gallwn gynghori a chynorthwyo gyda cheisiadau ar ystod eang o fudd-daliadau lles yn ymwneud ag iechyd.  Rydym yn wych yn llenwi ffurflenni.

People supported in 2016 welsh

Rydym yn cynnwys budd-daliadau prawf modd yn ymwneud ag incwm, yn ogystal â budd-daliadau nad ydynt yn profi modd fel Taliadau Annibyniaeth Personol a Lwfans Gweini.

Rydym yn helpu gyda chostau tai yn aml – pethau fel budd-dal tai, taliadau tai yn ôl disgresiwn a chyngor ar daliadau llog morgais – fel nad oes rhaid i gleifion canser a’u teuluoedd orfod poeni sut i gadw to uwch eu pennau.

Gallwn wneud cais am grantiau Macmillan, a ffynonellau cyllid eraill i helpu gyda chostau ychwanegol canser fel biliau gwresogi uwch, costau petrol a’r dillad ychwanegol sydd eu hangen ar bobl wrth i’w pwysau newid yn ystod eu triniaeth.

Nid yw popeth mor syml, felly rydym yn gweithio’n agos gyda phobl am gyhyd ag y maent ein hangen, yn cynnwys apelio yn erbyn penderfyniadau a mynychu tribiwnlysoedd ar eu rhan er mwyn sicrhau eu bod yn cael y budd-daliadau y mae ganddynt hawl iddynt oherwydd eu salwch.

Rydym hefyd yn cynghori pobl a allai fod yn gofalu am rywun â chanser, ac a allai fod yn wynebu gostyngiadau yn eu hincwm yn sgil eu cyfrifoldebau newydd llethol fel gofalwr.

Mae ein gwasanaeth yma i bobl o bob oed a phob sefyllfa bersonol.

Dywedwch wrthym am adeg pan wnaethoch wahaniaeth?

Mae’n gallu bod yn waith anodd ac emosiynol.  Cafodd un o’m cleientiaid ddiagnosis o ganser yr oesoffagws yn 40 oed, a bu farw o fewn tri mis o gael y diagnosis.

Nid oedd yn sefyllfa hawdd, ond roeddwn yn gallu sefydlu ei hawl i fudd-daliadau ar unwaith a chynghori dyn oedd erioed wedi hawlio budd-dal yn ei fywyd, beth oedd ar gael iddo oherwydd ei salwch.

Roedd yn ddifrifol wael, ac roedd yn rhyddhad amlwg iddo ac yn bwysau mawr oddi ar ei ysgwyddau i wybod bod o leiaf rhywfaint o’i gyllid mewn trefn.

Yn ddiweddarach, rhoddais arweiniad a chymorth ariannol i’w wraig a’i thri phlentyn ifanc a’u helpu gyda’u pryderon ynghylch sut i dalu’r rhent a sicrhau nad oeddent yn colli eu cartref.

Nid oedd dianc rhag y ffaith fod hon yn adeg dorcalonnus i’r teulu, ond roedd hefyd teimlad o ryddhad gwirioneddol bod o leiaf rhywfaint o bwysau’n cael ei ryddhau trwy drefnu eu sefyllfa ariannol.Impact Welsh

Pa gyngor fyddech chi’n ei roi i rywun sydd yn cael diagnosis o ganser?

Cael cyngor ariannol cyn gynted â phosibl.  Mae pryderon am arian yn gwaethygu os nad oes unrhyw beth yn cael ei wneud am y sefyllfa.

Mae llawer o bobl yn dweud wrthyf nad oes ganddynt unrhyw syniad pa gyllid oedd ar gael, ac oherwydd hynny, roeddent yn wynebu pryderon am arian ar yr un pryd â cheisio ymdopi gydag effeithiau emosiynol a chorfforol eu triniaeth.

I lawer, llenwi ffurflenni sydd yn eu brawychu os nad ydych erioed wedi hawlio budd-daliadau.

P’un ai eich bod yn credu eich bod yn gymwys neu beidio, byddwn yn argymell bod unrhyw un sydd wedi eu heffeithio gan ganser yn cysylltu.

Waeth beth yw’r broblem, yn fach neu’n fawr, rydym wrth law i gefnogi, cynghori a’ch rhoi ar ben y ffordd.

Os oes angen cymorth ariannol arnoch, ewch i www.macmillan.org.uk lle gallwch chwilio am eich gwasanaethau budd-daliadau lles lleol, neu ffonio Llinell Gymorth Macmillan ar 0808 808 00 00.