Tag Archives: Macmillan Cancer Support

Move more! Overcoming barriers to becoming and staying active

We’re moving away from the assumption that “rest is best” when it comes to living with and beyond cancer.  Macmillan’s physical activity manager Arry Beresford-Webb explains why Macmillan is so keen to learn what motivations and barriers people affected by cancer have to becoming and staying active.

arry-head-tw-image1We know that physical activity is important for cancer patients at all stages of cancer diagnosis. Macmillan has carried out a review of the evidence demonstrating the benefits of physical activity for cancer patients, this review is available on the Macmillan website.

We are working to ensure that everyone living with and beyond cancer is aware of the benefits of physical activity, moving away from the assumption that “rest is best” and is enabled to choose to become and stay active at a level that is right for them.

The vidence supports the role of physical activity in preventing decline in physical function during treatment without increasing fatigue, helping recover physical function after treatment, and in reducing risk of recurrence and risk of developing other long term conditions. For people with advanced cancers physical activity has a role in helping them to maintain independence and wellbeing.

Macmillan have a dedicated physical activity team based at our UK office in London, with a Physical activity manager in Wales and Northern Ireland. I am the manager for Wales, and have a background as a physical activity specialist in public health, the environment sector and the private sector.

Together we are responsible for the Macmillan physical activity strategy and supporting the development of mechanisms within the cancer care pathway to support people in maintaining or initiating physical activity in a way that is appropriate for them during and after treatment.

The team currently supports 60 physical activity projects nationwide, working together to improve the quality and quantity of local physical activity services, so they are then available to people affected by cancer. The programme includes research and development, influencing, implementation and evaluation

Macmillan have been working across the UK to develop and test an evidence based approach to physical activity behaviour change. We have worked closely with projects to learn what motivations and barriers people affected by cancer have to becoming and staying active, and to establish the best way of helping people to gain the confidence and knowledge of activity opportunities that are right for them.

In Wales we currently have physical activity pilots in Swansea and Cardiff, as well as developing pilots in West and North Wales. By working with individuals and linking with schemes such as the National Exercise Referral Scheme and Let’s Walk Cymru, people affected by cancer will have access to a wide range of opportunities to experience the physical, mental and social benefits of physical activity throughout their cancer journey.

Issues and concerns highlighted by patients through holistic needs assessment provide a fantastic opportunity to indicate where physical activity can play a role in that individuals physical, social and emotional needs. The use of this tool allows for the opportunity to highlight where it is appropriate to incorporate physical activity into individual care plans.

Some patients may need to take part in a closely monitored physical activity programme within a hospital environment to help them regain physical function, whereas for others it may be the social elements of joining a walking group or taking part in sports that they enjoyed prior to cancer diagnosis that is a priority. By working with the individuals needs physical activity is one part of supporting them to regain control of their lives.



It’s time to challenge widespread beliefs about cancer

Sgroliwch i lawr ar gyfer y blog Cymraeg

Helen Tyler 001Helen Tyler, Macmillan Head of Therapies at Velindre Cancer Centre in Cardiff, believes that person-centred care should be “enabling, coordinated, dignified and respectful.” As survival rates for cancer improve, Helen argues that we should be using a variety of methods to encourage people affected by cancer to live as healthy and as active a life as possible- for as long as possible.

The dramatic improvements in survival rates mean that we need to challenge widespread beliefs about cancer.

Cancer is increasingly an illness which might be cured or which might have the characteristics of a long term or chronic condition that people can live with for many years.

For the increasing numbers of people living with and beyond cancer, their carers, and their families, it is very important that they have the support and services that they need to make adjustments to the changes which have occurred as a result of the disease or its treatment.

People affected by cancer should be able to reach their maximum potential and achieve the best possible quality of life. RS10366__T0C6722-hpr ALT

The vision of the Velindre Cancer Centre Therapies team (which includes physiotherapy, occupational therapy, dietetics, speech and language therapy, working in close collaboration with clinical psychology and complementary therapies), is to ensure that people living with and beyond cancer have a personalised holistic needs assessment at diagnosis.  This assessment should repeated at intervals during the cancer journey to gather and discuss information to understand what the person living with and beyond cancer knows, understands and needs.

A personalized holistic needs assessment should be focused on the whole person:

  • Physical
  • Practical
  • Emotional
  • Spiritual
  • Psychological
  • Social
  • Environmental
  • Financial

From this assessment, a co-productive, person-centred care plan is provided with relevant information to empower patients to manage their condition. Person-centred care should be enabling, coordinated, dignified and respectful

Ten Top Tips for patients affected by cancer to promote self-management

My ten top tips for patients affected by cancer to promote co-productive, supported, self-management are:

  1. Discuss your needs and develop a care plan
  2. Ask about a treatment summary
  3. Find your main contact
  4. Be aware of any post-treatment symptoms
  5. Get support with day to day concerns
  6. Talk about how you feel
  7. Try to lead a healthier life style
  8. Know what to look out for
  9. Be aware of your own health
  10. Share your experiences

Coordination across primary and secondary care and across health and social care is also necessary. There should also be a requirement for the routine use of patient reported outcome measures to monitor problems as defined by the patients.

During, and following cancer treatment, some people will be left with physical or psychological problems which affect their health and wellbeing. There are some very practical actions that can be taken to make a difference to people following cancer treatment.

Our vision is for people to be informed and prepared for the long term effects of living with and beyond cancer, and that health and care services are responsive to individual needs to ensure access to specialist care when needed. This may be achieved from:

Information, education or advice e.g.:

  • leaflets
  • top tips
  • use of media

Group treatment interventions e.g.:

Individual complex care e.g:

Our strategy is that people affected by cancer are supported to live as healthy and active a life as possible for as long as possible. For some, cancer can be an ‘acute illness’ which can be cured by initial treatment. Being ‘cured’ however does not mean one is necessary well.

Chronic consequences of treatment may need to be managed over months and years, consequences which often have a devastating impact on daily life. For those with advanced disease, we want to support them to have an active and independent life as possible.

If you’re living with or looking after someone with cancer and need information or support, call 0808 808 00 00 or visit www.macmillan.org.uk.

Macmillan Cancer Support in Wales believes that every person with cancer should have a holistic needs assessment undertaken using a validated tool. The outcomes from this discussion, and the actions agreed with the patient should be set out in a written care plan, a copy of which should be offered to the patient. Read more about our Manifesto calls.


Mae’n bryd herio’r syniadau cyffredin am ganser

Mae Helen Tyler, Pennaeth Therapïau Macmillan yng Nghanolfan Canser Felindre yng Nghaerdydd, yn credu y dylai gofal sy’n canolbwyntio ar unigolion fod yn “galluogi, wedi’i gydlynu, yn urddasol ac yn parchu.” Wrth i’r cyfraddau goroesi ar gyfer canser wella, mae Helen yn dadlau y dylem fod yn defnyddio amrywiaeth o ddulliau i annog y rhai sydd wedi’u heffeithio gan ganser i fyw bywyd mor iach a phrysur ag sy’n bosibl – cyn hired ag sy’n bosibl.Helen Tyler 001

Gan fod cyfraddau goroesi wedi gwella’n syfrdanol, mae angen inni herio syniadau cyffredin am ganser. Yn fwyfwy, mae canser yn afiechyd a allai gael ei wella neu a allai fod â nodweddion cyflwr tymor hir neu gronig y gall pobl fyw gydag ef am nifer o flynyddoedd.

Felly mae’n bwysig iawn fod y nifer cynyddol o bobl sy’n byw gyda chanser a’r tu hwnt iddo, eu gofalwyr a’u teuluoedd yn cael y cymorth a’r gwasanaethau sydd eu hangen arnyn nhw i addasu’r newidiadau sydd wedi digwydd o ganlyniad i’r clefyd neu’r driniaeth, a hynny fel y gallant gyflawni eu potensial mwyaf posibl a chael yr ansawdd bywyd gorau posibl.

Gweledigaeth tîm Therapïau Canolfan Ganser Felindre sy’n cynnwys Ffisiotherapi, Therapi Galwedigaethol, Dieteteg, Therapi Lleferydd ac Iaith, gan gydweithio’n agos â Seicoleg Glinigol a Therapïau Cyflenwol, yw sicrhau bod y rhai sy’n byw gyda chanser a’r tu hwnt iddo’n cael asesiad anghenion cyfannol wedi’i bersonoli adeg y diagnosis, a bod hynny’n cael ei ailadrodd bob hyn a hyn ar hyd eu taith ganser i gasglu a thrafod gwybodaeth er mwyn deall yr hyn y mae’r person sy’n byw gyda chanser a’r tu hwnt iddo’n ei wybod, ei ddeall a beth sydd ei angen arno.

Dylai ganolbwyntio ar y person cyfan:

  • Yn gorfforol
  • Yn ymarferol
  • Yn emosiynol
  • Yn ysbrydol
  • Yn seicolegol
  • Yn gymdeithasol
  • Yn amgylcheddol
  • Yn ariannol

O’r asesiad hwn, darperir cynllun gofal ar y cyd sy’n canolbwyntio ar yr unigolyn gyda gwybodaeth berthnasol fel y gall cleifion reoli eu cyflwr. Dylai gofal sy’n canolbwyntio ar yr unigolyn alluogi, dylai gael ei gydlynu, dylai fod yn urddasol ac yn dangos parch.

10 Awgrym Gwych ar gyfer cleifion er mwyn hyrwyddo hunanreoli ar y cyd, gyda chymorth:

  1. Trafodwch eich anghenion a datblygu cynllun gofal
  2. Gofynnwch am grynodeb o’r driniaeth
  3. Dewch o hyd i’ch prif berson cyswllt
  4. Byddwch yn ymwybodol o unrhyw symptomau ar ôl y driniaeth
  5. Gofynnwch am gymorth gyda phryderon o ddydd i ddydd
  6. Siaradwch am sut rydych chi’n teimlo
  7. Ceisiwch ddilyn ffordd o fyw iachach
  8. Dewch i wybod am beth y dylech chi gadw llygad
  9. Byddwch yn ymwybodol o’ch iechyd eich hun
  10. Rhannwch eich profiadau

 Mae angen cydlynu ar draws gofal cynradd ac uwchradd ac ar draws gofal iechyd a gofal cymdeithasol hefyd. Mae gofyn defnyddio fel mater o drefn fesurau canlyniadau y mae’r cleifion yn rhoi gwybod amdanyn nhw i fonitro problemau fel y’u diffiniwyd gan y cleifion.

RS10366__T0C6722-hpr ALTYn ystod triniaeth ganser ac ar ei ôl bydd rhai pobl â phroblemau corfforol neu seicolegol sy’n effeithio ar eu hiechyd a’u lles. Mae rhai camau ymarferol iawn y gellir eu gwneud i wneud gwahaniaeth i bobl ar ôl triniaeth ganser.

Ein gweledigaeth yw i bobl gael gwybodaeth am effeithiau tymor hir byw gyda chanser a’r tu hwnt iddo a’u bod yn barod amdanynt, a bod gwasanaethau iechyd a gofal yn ymateb i anghenion unigolion er mwyn sicrhau eu bod yn cael mynediad i ofal arbenigol pan fydd angen. Gall hyn fod ar ffurf:-

  • Gwybodaeth, addysgu neu gyngor, e.e.:
    • taflenni
    • awgrymiadau gwych
    • defnyddio’r cyfryngau
  • Ymyriadau triniaeth grŵp, e.e.:
    • rheoli blinder
    • rheoli pwysau
    • rheoli pryder
    • ymwybyddiaeth ofalgar (Mindfulness)
    • byw gydag ansicrwydd
    • rheoli gweithgarwch corfforol
    • adsefydlu galwedigaethol
  • Gofal cymhleth unigol, e.e.:
    • ffisiotherapi – symudedd, swyddogaeth, aciwbigo
    • therapi galwedigaethol – darparu cymhorthion ac addasiadau
    • dieteg – gofynion maethol a diet penodol
    • therapi Lleferydd ac Iaith – llyncu, cyfathrebu
    • therapi cyflenwol – Adweitheg (Reflexology), tylino’r corff

Ein strategaeth yw y dylai rhai sydd wedi’u heffeithio gan ganser gael cymorth i fyw bywyd mor iach ac egnïol ag sy’n bosibl gyhyd ag sy’n bosibl. I rai, gall canser fod yn ‘afiechyd acíwt’ y gellir ei wella drwy driniaeth gychwynnol. Ond dyw ‘cael eich gwella’ ddim yn golygu eich bod chi’n iach o angenrheidrwydd. Efallai bydd angen rheoli canlyniadau cronig triniaeth dros fisoedd a blynyddoedd, canlyniadau sy’n aml yn cael effaith ddinistriol ar fywyd bob dydd. Gyda’r rhai sydd â’r afiechyd wedi datblygu ymhellach, rydym eisiau eu cynorthwyo er mwyn iddyn nhw gael bywyd mor egnïol ac annibynnol ag sy’n bosibl.

Os ydych chi’n byw gyda rhywun sydd â chanser arno neu’n gofalu am rywun fel hyn, a bod arnoch angen gwybodaeth neu gymorth, ffoniwch 0808 808 00 00 neu ewch i  www.macmillan.org.uk.

Mae Cymorth Canser Macmillan  yng Nghymru’n credu y dylai pob un sydd â chanser gael asesiad anghenion cyfannol wedi’i wneud gan ddefnyddio adnodd wedi’i ddilysu. Dylai canlyniadau’r drafodaeth hon, a’r camau gweithredu y cytunwyd arnynt gyda’r claf gael eu gosod mewn cynllun gofal ysgrifenedig, a dylai’r claf gael cynnig copi ohono. Darllenwch ragor am y pethau y mae ein  Maniffesto yn galw amdanynt.
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